Moving to hospice care & visiting :-)

I always feel better when a decision is made, even an incredibly hard one. This time is no different but also different. My brain and my body have decided to forego treatment for MBC, and I have signed on with hospice care.   

But Amy there are at least a couple more chemotherapies? There are clinical trials! As to the latter Dr.  Dan Stover at OSU said he would deliver one to my door if that were allowed, (he is really a compassionate and amazing clinician), but he doesn't recommend I travel for one. I've also been of that mind for awhile. 

The two chemotherapies would be rough on my body which has taken a beating the last 5.5 years but particularly the last couple months. Many are also processed through the liver, and my liver enzymes have spiked consistently and bilirubin above normal. The liver is in bad shape and if you've been following along you know the lungs are too. I've been on continuous oxygen for a couple weeks now. We've given Enhertu (current treatment) time to work, and I'm still declining. Both oncologists (including my phenomenal local oncologist, Dr. Gina Chung) think this is the right decision for me, which helps enormously, even pointing out that the chemos could kill me, which would be, ah, counter productive. 

I would like to get some more "good time", which for me at this point of energy etc. is spending time with people, texting, etc. before I shuffle off this mortal coil, and I think this is the best way to do that. My energy vacillates wildly but I am sleeping quite a bit. I may be up for a short visit or text depending on the day. One wouldn't think socializing (or emailing or texting) could be so exhausting (worth it) so please give me grace if I need to change or cancel plans or don't reply to a message. Speaking of- many are asking when they can visit - my sister and Jen made a sign up genius (click here)!  It's flexible though so if you need to adjust some that's ok. You'll also see it's mostly afternoon, which for now, is a better time for me. 

I feel like this should be longer, but for now that's all I have energy for :-)

Love you guys.